Friday, August 29, 2025

22M Graves Disease recent diagnosis on carbimazole Telangana PaJR

 


18-08-2025

THIS IS AN ONLINE E LOG BOOK TO DISCUSS OUR PATIENT'S DE-IDENTIFIED HEALTH DATA SHARED AFTER TAKING HIS SIGNED INFORMED CONSENT. HERE WE DISCUSS OUR PATIENT'S PROBLEMS THROUGH SERIES OF INPUTS FROM AVAILABLE GLOBAL ONLINE COMMUNITY EXPERTS WITH AN AIM TO SOLVE THOSE PATIENT'S CLINICAL PROBLEMS
WITH COLLECTIVE CURRENT BEST EVIDENCE BASED INPUTS.

[21-08-2025 11:50] PPM 1: @PPM3 can you have a telephonic session with the patient advocate here to collect an event timeline as well as the clinical and investigation images at a time of mutual convenience?
[21-08-2025 12:02] PA: I will be free "tomorrow between 7-10 in the morning and post 6PM in the evening "to provide the required information.
[21-08-2025 14:40] PPM 3: will do sir
[21-08-2025 14:40] PA: Noted
[29-08-2025 08.22] PA: Hi, Apologies for the delayed response - These are the blood test reports after 17th day of using carbimazole 10mg


[29-08-2025 08.04] PA: This is the report 2 days before coming to the hospital
[29-08-2025 08:08] PA: Symptoms before Carbimazole 
1. Dull pain in stomach while standing or sleeping (October)
2. Pain got increased at nights after having beef for consecutive 4days, blood after stool (November)
3. Started going to washroom 2-4 times a day with pain in the intestine 
4. Lost weight from 62 to 50
5. Feels dizzy and exhausted all the time 
6. Used to play cricket for hours without even having food now can't even play 10 mins at any moment 
7. Sweats a lot even after any simple work
8. I feel like resting on the bed after standing 3-4 mins
9. Heartbeat increases after any little work, and is usually high while resting 
10. Can't stand for a few mins 
11. Pain in the knees while standing, climbing or getting down on stairs
[29-08-2025 08:09] PA: Relief post usage of Carbimazole
[29-08-2025 08:14] PA: 1. Not feeling exhausted 
2. No sweating 
3. Pain in stomach reduced to almost 70-80%
4. Wait gained from 50(06/08/2025) to 52kg (26/08/2025)
5. Stool frequency has decreased from 3-4 times a day to 1-2 times a day, rarely 3 times
6. Reduced joint pains
7. Thickening of Hair 
8. Eyes balls that don't pop out
9. Heartbeat decreased (Patient could notice his heart racing before using carbimazole, he could see it through and hear it when he plugs in earphones)
10. No palpitations if he does a bit of jogging
[29-08-2025 08:16] PA: Things that still need to be changed 
1. Still couldn't sleep before 1:30 or 2:30 and wake up by 5:30 or 6 (but the quality of sleep has increased as in he doesn't get up in his sleep as much as he used to)
[29-08-2025 08:19] PA: Noticed side effects of Carbimazole (Not sure if it's because of Carbimazole but it did occur during the usage)
1. Sensitivity to sunlight - Patient got mildly itchy whenever he steps out or if there's a change in the environment 
2. The whole body got unbearably itchy only one for day 4 days back (22/08/2025) (he took an avil and the itchiness went never returned in these 4days)
[29-08-2025 10:13] PPM 1: Very well described 👏👏
Your patient is lucky to have you as an advocate and I suppose he too is sharing his symptoms meticulously with you👍
[29-08-2025 10:13] PPM 1: @CR let's collate everything into a case report so that the shared information can be analysed further here using Web 2.0-3.0 approaches
[29-08-2025 10:15] PPM 1: This report may have another page where it mentions the total leucocyte count.
Please share the thyroid function test report of T3, T4 , TSH
[29-08-2025 10:17] PPM 1: While you have shared your patient's events very well, please go through our official template here
to see if you can add more.
[29-08-2025 11:00] PA: Sure. T3, T4 TSH Values before Carbimazole

                                                            CBC Before Carbimazole
                                            
[29-08-2025 11:08] PPM 1: The total leucocyte count is same in both reports
[29-08-2025 19:49] PA: Hi Doctor 
Can I start going to the gym again?
[29-08-2025 20:55] PPM 1: Yes if your patient wants to start exercising again please keep sharing his hourly routine including his diet plates here 
Check out how this is done by our other patients here 👇
[30-08-2025 01:18] PA: Sure Will do
[03-09-2025 23:03] PA: Day 1 - 3rd Sept 2025 
5:30 AM - Woke up 
6:15-7:15 - Work out 
8:00 - Breakfast 
9:00 AM - 1:00 PM- Office 
1:00 PM -2:00PM Lunch 
2:00 PM -6:00PM Office 
6:00 PM -8:30PM Leisure 
8:30PM - Dinner 
9:15 PM-10:30PM - Office work 
10:30 - 11:00 Listened to Music
[03-09-2025 23:05] PA: Breakfast 
4 Boiled Eggs (With Ghee and Red Chilli powder sprinkle)
1 Banana 
Lunch - Potato and Dal curries Rice and curd
Dinner - Chicken Curry and Rice
PPM 1: 👍
[05-09-2025 08:11] PA: Day 2 - 4th Sept 2025 
5:30 AM - Woke up 
6:15-7:15 - Work out 
8:00 - Breakfast 
9:00 AM - 1:00 PM- Office 
1:00 PM -2:00PM Lunch 
2:00 PM -6:00PM Office 
6:00 PM -7:30 leisure 
Slept By 8PM
Woke up in btn at 2, slept and Woke up again at 5:30
[05-09-2025 08:12] PA: Breakfast 
4 Boiled Eggs (With Ghee and Red Chilli powder sprinkle)
 3 Idly 
Lunch - 3 Roti, Dal, Bhindi Curry, Carrot Beetroot fry and curd
Dinner - Chicken Curry and Rice
[05-09-2025 08:12] PA: Couldn't Send yesterday as I was asleep by 8
[-5-09-2025 21.09] PA: Day 3 - 5th Sept 2025 
5:40 AM - Woke up 
6:25-7:25- Work out 
8:00 - Breakfast 
9:00 AM - 1:00 PM- Office 
1:00 PM -2:00PM Lunch 
2:00 PM -6:00PM Office 
6:00 PM -7:30 Meeting 
7:30-9:00 cooked and had food. 
Trying to sleep by 9:30 
 Breakfast - 4 Boiled Eggs (With Ghee and Red Chilli powder sprinkle)
 1 Banana and an orange
Lunch - Brown rice, Drumstick tomato curry, Sambar 
 Dinner - Rice and Aloo curry
[06-09-2025 23:00] PA: Day 4 - 6th Sept 2025 
10:00 AM - Woke up 
10:20 - Breakfast
11:00-02:00 Attended a Session 
2:00 PM Lunch
2:45 PM to 3:30 PM Laundry
04:00 PM to 06:00 PM - Went out
06:00 PM to 08:00 PM slept 
08:00PM Had Dinner
9:30 PM Scrolled for a while 
11:00PM - Trying to sleep 
 Breakfast - 4 Boiled Eggs (With Ghee and Red Chilli powder sprinkle)
Smoothie -1 Banana, 50gm Oats, 15gm Peanut butter 
 Lunch - Chicken Curry rice and Curd
 Dinner - Chicken Curry and Rice
[07-09-2025 09:39] PPM 1: One egg per day is a better idea. Please share the food plate images of the patient for us to evaluate better.
[07-09-2025 12.50] PA: Noted Doctor
[07-09-2025 12:52] PA: This is what patient generally use to track and make his own meals
[07-09-2025 12:53] PA: Suggest changes if required
[07-09-2025 12:54] PA: This is made by the patient himself and has been using it for the last 4 years excluding Jan to July end 2025
[07-09-2025 12.56] PPM 1: 👆@PPM3@PPM2 @PPM5@PPM6 please check out the nicely done work of this patient's advocate here as far as quantitative documentation of his diet energy inputs are concerned
[07-09-2025 16:19] PPM 2: Fantastic work! Would love to see pictures of food plates though.
[07-09-2025 16:20] PPM 2: Hopefully one day our sensor will be able to pick how much salt the foodplate has and how many micro nutrients etc.
[07-09-2025 17:23] PA: Will share starting tomorrow morning
[07-09-2025 18:33] PPM 5: Brilliant!!
[07-09-2025 18:33] PPM 5: What is the patient advocate using to compute this from the patient's food plate? Any app?
[07-09-2025 19:05] PA: The patient weighs the ingredients before cooking so that it is easier to track macro nutrients. Nutrition facts of each ingredient are gathered from either food labels or through a Google search, 
Once obtained 
According to patients knowledge Each Carb and Protein is multiplied by 4 as 1gm of carb / protein = 4 calories 
And Fat is multiplied by 9 as 1gm fat = 9 calories
[07-09-2025 19:08] PPM 5: Superb! What a patient we have!!
[07-09-2025 19:14] PPM 2: Great work and insights.
[07-09-2025 19:14] PPM 2: I'm curious, why is the patient meticulously tracking these?
[07-09-2025 19:18] PA: Patient is 
1. Focused towards long-term health 
2. Does workouts (started in 2020 Age 17)
3. Also into Martial Arts So important to maintain weight while getting stronger
[07-09-2025 20:21] PPM 2: Excellent. We should consider changing the title of this PaJR group then.
[07-09-2025 20:27] PPM 1: Suggest a new title!
[07-09-2025 20:50] PPM2: 22/M Health Journey with Graves' Disease
[07-09-2025 21:32] PPM 1: Duration of disease would be useful upfront in the title
[08-09-2025 07.51] PA: Patient converts ingredients in the plate, into a shake using water only, and consume it after Having eggs
[08-09-2025 07:58] PPM 1: I should have taken a side profile of the patient when met him at the time with weight loss etc because now I'm sure that if I see him again he'll look more like a body builder!
[08-09-2025 08:01] PA: Patient has pictures/videos of before the weightloss and after the weightloss
[08-09-2025 08:03] PPM 1: Here are some transformative images of another past patient from may to November 2023. Will try to gather recent ones to update there 👇
[08-09-2025 08:03] PPM 1: Please share in the lateral view as demonstrated above after deidentification.
[08-09-2025 08:03] PA: Sure
[08-09-2025 13.23] PA: Lunch plate 👆, will share the lateral view by EOD
[08-09-2025 15:45] PPM 1: Mango?
[08-09-2025 16:38] PA: Yes

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