3M With Osteogenesis Imperfecta With Bilateral Femur and Tibia Telangana PaJR

 

25-04-2025

THIS IS AN ONLINE E LOG BOOK TO DISCUSS OUR PATIENT'S DE-IDENTIFIED HEALTH DATA SHARED AFTER TAKING HIS GUARDIAN'S SIGNED INFORMED CONSENT. HERE WE DISCUSS OUR PATIENT'S PROBLEMS THROUGH SERIES OF INPUTS FROM AVAILABLE GLOBAL ONLINE COMMUNITY EXPERTS WITH AN AIM TO SOLVE THOSE PATIENT'S CLINICAL PROBLEMS WITH COLLECTIVE CURRENT BEST EVIDENCE BASED INPUTS.

[25-04-2025 13.08] PPM 1: OPD now: @PPM2 @PPM3 interesting UK and India training angle

3 years old toddler with osteogenesis imperfecta with fractures of bilateral femur and tibia who couldn't be operated at our top government centers in Hyderabad like NIMs but the visiting card in the attached image of the person who got trained in pediatric orthopedic surgery to finally do an IM nailing of all the four bones.

Now they need help to buy a splint and a walker. 

 

GENETIC REPORTS

[25-04-2025 13:27] PPM 2: Great. How is the child doing now?

[25-04-2025 13:38] PPM 3: AIIMS Bibinagar Department of PMR will guide after examination🙏🏻

[25-04-2025 16:21] PPM 1: His parents showed us in the OPD as one of them had developed Repetitive strain injury to the shoulder and back muscles from the strain of carrying him!

[25-04-2025 16:21] PPM 1: Do you know anyone there?

[25-04-2025 1622] PPM 3: 👍

[2:10 pm, 18/11/2025] PA: Hello sir

[2:33 pm, 18/11/2025] PPM 1: 🙂🙏

[2:56 pm, 18/11/2025] PA: Namaste sir 

How are you

[2:57 pm, 18/11/2025] Rakesh Biswas Sir: 🙏

Please share how is your patient.

Please keep him deidentified

[2:57 pm, 18/11/2025] PA: I'm at the hospital sir can I meet you?

[2:59 pm, 18/11/2025] PPM 1: In ICU.

Yes can

[4:13 pm, 18/11/2025] PPM 1:  https://sevabharathihospital.netlify.app/

We can ask them to provide OT for operating free of cost

[4:20 pm, 18/11/2025] PPM 1: @PPM4 was talking now to our Professor of Orthopaedic and he said he can himself do it here in consultation with the current paediatric orthopaedic surgeon after knowing his exact plan.

[4.22 pm, 18/11/2025] PPM 1: Even our orthopedic couldn't read his handwriting where he has mentioned his plan! @PPM5 @PPM6 would you like to give it a try?

[4.24 pm, 18/11/2025] PPM 1: This was the surgery done a year back.

[4:26 pm, 18/11/2025] PPM 1: This is the current state and the pediatric orthopedician wants to remove these nails and insert fresh ones which will amount to a cost of 300,000.

[4:28 pm, 18/11/2025] PPM 1: Already the father has spent 4 lakhs in his prior surgery and is currently hunted daily by loan sharks to repay the previous loan because of which he has to keep changing his mobile number!

He works as a sales agent for an auto showroom and makes a small amount of money every month depending on his sales.

[4:48 pm, 18/11/2025] PPM 5: planned for __

b/l femur, tibial

given __ letter for 2 __

my best deduction sir 😅

[4:52 pm, 18/11/2025] PPM 1: Can you talk to the prescriber?

[4:53 pm, 18/11/2025] PPM 5: Yes sir, I’ll try to get in touch with them during their OP timings (6-9 as mentioned in the slip)

[6:13 pm, 18/11/2025] PPM 5: We're planning exchange nailing for him doc

[6:14 pm, 18/11/2025] PPM 5: From the other doctor, sir ^^

[7:24 pm, 18/11/2025] PPM 1: Dr Anand?

[7:27 pm, 18/11/2025] PPM 5: Yes sir

[7:42 pm, 18/11/2025] PPM 1: That's great. So he's communicating on WhatsApp?

[8:07 pm, 18/11/2025] PPM 5: Yes sir!

I sent him his prescription and he told me that. He was also curious as to why an MBBS student was following up instead of an Orthopaedics PG, I explained to him about what we do and he was quite appreciative of our efforts sir! He was also willing to give advice if we had any doubts, on a personal basis, rather than joining the group…

[8:07 pm, 18/11/2025] PPM 1: That's great 👏👏

[8:08 pm, 18/11/2025] PPM 1: Next step would be to get him and Prof Anil to do the surgery here in our hospital.

Or just Prof Anil can do it here once both of them decide the technical requirements

[9:16 pm, 19/11/2025] PA: Thank you @PPM1 Sir @PPM5