3M With Osteogenesis Imperfecta With Bilateral Femur and Tibia Telangana PaJR

 

25-04-2025

THIS IS AN ONLINE E LOG BOOK TO DISCUSS OUR PATIENT'S DE-IDENTIFIED HEALTH DATA SHARED AFTER TAKING HIS GUARDIAN'S SIGNED INFORMED CONSENT. HERE WE DISCUSS OUR PATIENT'S PROBLEMS THROUGH SERIES OF INPUTS FROM AVAILABLE GLOBAL ONLINE COMMUNITY EXPERTS WITH AN AIM TO SOLVE THOSE PATIENT'S CLINICAL PROBLEMS WITH COLLECTIVE CURRENT BEST EVIDENCE BASED INPUTS.

[25-04-2025 13.08] PPM 1: OPD now: @PPM2 @PPM3 interesting UK and India training angle

3 years old toddler with osteogenesis imperfecta with fractures of bilateral femur and tibia who couldn't be operated at our top government centers in Hyderabad like NIMs but the visiting card in the attached image of the person who got trained in pediatric orthopedic surgery to finally do an IM nailing of all the four bones.

Now they need help to buy a splint and a walker. 

 

GENETIC REPORTS

[25-04-2025 13:27] PPM 2: Great. How is the child doing now?

[25-04-2025 13:38] PPM 3: AIIMS Bibinagar Department of PMR will guide after examination🙏🏻

[25-04-2025 16:21] PPM 1: His parents showed us in the OPD as one of them had developed Repetitive strain injury to the shoulder and back muscles from the strain of carrying him!

[25-04-2025 16:21] PPM 1: Do you know anyone there?

[25-04-2025 1622] PPM 3: 👍